Counseling, Psychology, & Special Education
School of Education
Male caregivers, FTD, Ambiguous Loss, Interdependence Theory, Investment Model of Commitment
THE LIVED EXPERIENCES OF MALES WITHIN A COMMITTED RELATIONSHIP WHO ARE THE PRIMARY CAREGIVERS FOR A PARTNER DIAGNOSED WITH FRONTOTEMPORAL DEMENTIA
Aniela Kathryn Scanlon
Dissertation supervised by Dr. David Delmonico
Spouses who are caregivers for their partner with dementia experience significant changes within the relationship and in their daily lives. There is a focus in the extant literature on female caregivers and types of dementia that are more mainstream, like Alzheimer’s disease. However, little is known about the lived experiences of male primary caregivers for a spouse or partner diagnosed with dementia such as frontotemporal dementia. This qualitative phenomenological study explored the lived experiences of male primary caregivers in a committed relationship who are the primary caregiver for a partner diagnosed with frontotemporal dementia (FTD) to understand how the male primary caregivers are personally impacted and how they experience interdependence and intimacy and ambiguous loss within the relationship. This study found male primary caregivers for a partner with FTD are deeply emotionally impacted by the changes in interdependency and intimacy within the relationship. This study also found that male primary caregivers retain their sense of independence even though their time to participate in individual activities is limited due to the caregiving role tasks.
Scanlon, A. (2020). The Lived Experiences of Males within a Committed Relationship Who Are the Primary Caregivers for a Partner Diagnosed with Frontotemporal Dementia (Doctoral dissertation, Duquesne University). Retrieved from https://dsc.duq.edu/etd/1949