Defense Date

5-13-2022

Graduation Date

Summer 8-13-2022

Availability

One-year Embargo

Submission Type

dissertation

Degree Name

PhD

Department

Health Care Ethics

School

McAnulty College and Graduate School of Liberal Arts

Committee Chair

Gerard Magill

Committee Member

Joris Gielen

Committee Member

Peter Ikechukwu Osuji

Keywords

Treatment, Research, Advanced Disease, Ethics, Palliative Care

Abstract

There is often ethical analysis focusing solely on the care of the patient by the physician or on the protection of the research participant by the clinical investigator, but those two are often overlapping. By paralleling the analysis of treatment and research, it emphasizes the specific ethical approaches necessary for individuals facing advanced diseases states in the separate roles of being a patient or participant. It also gives guidance to the complexity of the ethics surrounding medical professionals who float between the roles of treating physicians and clinical investigators. As individuals with advanced disease states are considered a vulnerable population due emotional and disease burden, the approach must be reanalyzed from initial diagnosis, during treatment, and at the end of life to reevaluate the most appropriate ethical approach for protection of the patient receiving treatment and the participant contributing to clinical research.

Language

English

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